
The world lost a pillar of the HIV/AIDS activistism today with the passing of Martin Delaney . Marty was the founder of Project Inform and the person responsible for creating the FDA's "parallel track" policy along with Anthony Fauci at the NIH in 1989. As reported by Poz.com's Peter Staley, that policy "allowed patients with AIDS whose condition prevents them from participating in controlled clinical trials to receive promising experimental drugs."
In my own work as an activist and educator I can't tell you how many times I recommended and referred to Project Inform's incredible wealth of information for the care and treatment of people with HIV. In the days before the internet accurate information was key to our survival and Marty worked to not only gather but also disseminate this information to everyone who needed it, in an understandable format. On Monday January 19, 2009 Marty was just honored by Dr. Tony Fauci, the Director of the National Institute of Allergy & Infectious Diseases (NIAID), for his selfless work in the fight against HIV/AIDS. Marty was awarded the "Special Recognition Award for his lifesaving work to advance safe and effective HIV medications and inform people with HIV about their treatment options and health care."
Personally I had the privilege of knowing Marty and working with him over the years. I cannot imagine how we would have continued to make the gains we have in HIV that we have accomplished without his tireless work. I can only echo the words written by Project Inform,
Personally and through Project Inform, Marty has educated or counseled tens of thousands of HIV-positive individuals and their caregivers about how to treat HIV. A day does not pass in the life of this agency that we do not hear from a person living with HIV or a supporter about a life lengthened or saved as a result of Marty’s efforts.
If it were not for Marty's work, I do not know if I would be alive today either.
There was a slogan taken from a Dylan Thomas poem we used to use in ACT UP :
Do not go gentle into that good night,
Old age should burn and rave at close of day;
Rage, rage against the dying of the light
Rest now old friend your work here is done.
